Life.

It's just how it is.

   Aug 15

I HATE HD!

I haven’t blogged in a while mostly just out of laziness but it is time to start back and record the goings on of LIFE.

WARNING!! Maybe a little graphic.

For the last week we have been dealing with the ups and downs that are Nate. His belly is acting off again. It all started a week ago. We jumped in the van right after dinner and went to his cousin Hailie’s soccer game. The boys had a great time running around and being goofy. On our way home about 2 minutes from arriving Nate threw up ALL over himself. We got home and got him cleaned up and then it started coming out the other way and his body flushed itself. The next day his belly became very distended reaching 60cm in diameter (52cm is flat for him). He was fevered, lethargic, no appetite and not able to pass stool on his own. I gave him a suppository and 2 hours later he finally passed some. The next day was the a repeat with another suppository. On Saturday Rob and I agreed to wait and see how he did on his own. His appetite was a little better in the morning but not normal and down by dinner. More time passed and finally on Sunday afternoon he finally had a movement on his own. But all is not right. Monday on he has had a lowered appetite, diarrhea (worse then normal) and a lot of bloating. Yesterday the bloating from gas got so bad that he was doubling over in pain. My poor boy. Today doesn’t seem to be any better. He is bloated again and so far no movements. We are at a loss/I am at a loss for what to do. We have started him back on antibiotics in case it is entrocolitis (an infection in the bowel) again and we have been in touch with his doctor to help keep an eye on it. But for now we just wait and hope that it will all be okay in the end. I am so worried. I am stressed and wondering if I am doing the right thing. I spend my time play the What If game and wondering if I am doing what is best. I just needed to share to someone. Anyone. Heck even no one. Even if this is never read I needed to share this. I am feeling very stressed out by all of this and how days like these will affect him when he has started school come next month.

My head is spinning. If you have read this, thank you. I just needed to vent.

I know there are a lot of diseases out there that are just as bad or worse and I feel for the people who suffer them and their family’s.

I can’t say it enough but on days like today I have to say it. I. HATE. HIRSCHSPRUNG’S!

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