It's just how it is.

   Feb 28

Thank you. #137

I am thankful to not be alone. As I posted in another post Nate is a member of the rare disease club. This could be a very lonely place to be as a child and the parent of a rare disease child but thanks to technology we have been able to connect with a lot of others around the world who also have the same rare disease changing that loneliness into a feeling of pride at the strength we have had to face the unknown and to help others to face their unknown. I am thankful for the support of all of our bowel buddies.


Posted a day late as I fell asleep typing. 🙂


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