I am thankful for health. Nate has been sick with a fever and sore throat for the last 5 days and on antibiotics for 3 of them. I was starting to worry that his fever wasn’t going even with being on antibiotics but today he woke up feeling great and (90%) back to his old self. I am so thankful that he is on the mend.
Thank you. #142
I am thankful for a short wait. Today I took Nate for a follow up visit at the walk-in clinic. Normally I find the wait at the walk-in clinic to be 1-2 hours. Thankfully today’s wait was only about 45 seconds. I didn’t even get to sit down in the wait room before they called us in to the exam room. I am thankful that I didn’t have to spend half my day sitting in a wait room with a sick kid.
Thank you. # 141
I am thankful for Nate cuddles. Nate has been sick for a few days. He is always very cuddley but when he is sick all he wants is to cuddle. He has this way of cuddling with his whole body. It almost feels like he is trying to fuse himself into you to become one and you can feel his cuddles right through to your core. I love those cuddles, they took every part of my heart and leave been with such a feeling of love. I will miss them some day when he is to old to cuddle mom but I will never forget them.
Thank you. # 140
I am thankful for modern medicine. Nate is sick with strep throat. Nothing to bad but the poor kid is feeling horrible. I can’t imagine what it would be like to not have the medicine available to heal him. I know it can pass without medicine bit can’t imagine putting someone through that.
I so thankful that he is on medicine and should soon be felling a lot better.
Thank you. # 139
I am thankful to have the chance to go and sit and listen to a sermon delivered by one of my favorite people (definitely my favorite minister). Thank you Rebekah for inviting us. ♡♡Hugs♡♡
Those of us that could make it were thankful to be there.
Thank you. #138
Today is rare disease day. It is also my 3 3/4 anniversary. Rob and I were married on February 29, 2000. I sit here stunned to think that we have been together for 17 years and as of today (or early tomorrow I am not sure how exactly it times out) married for 15 year. I am thankful today and everyday for the most important person in my life. I love you Rob as much today as I did the day we got married. I am so happy to have found someone who I fit so well with in life and I am so thankful to have you to share my life with.
I love you Rob. Happy 3 and 3/4 anniversary.
Thank you. #137
I am thankful to not be alone. As I posted in another post Nate is a member of the rare disease club. This could be a very lonely place to be as a child and the parent of a rare disease child but thanks to technology we have been able to connect with a lot of others around the world who also have the same rare disease changing that loneliness into a feeling of pride at the strength we have had to face the unknown and to help others to face their unknown. I am thankful for the support of all of our bowel buddies.
Posted a day late as I fell asleep typing. 🙂
I care about someone RARE.
Tomorrow February 28th is a special day to me. It is Rare Disease Day. As a mom who almost lost a child to a rare disease this day touches a special place in my heart. Please help me in celebrating the day by wearing jeans tomorrow and by becoming Aware of something Rare then Share. Take a moment and visit www.rarediseasefoundation.org or www.rarediseaseday.org and learn something new. Please also take a moment to share something you have learned in the comments below or with others in your life. Show you care about someone rare by being aware!
Here is my Share:
This is my son Nathanial. He is six and one of the most loving children I have ever had the joy of knowing Nathanial was born with Hirschsprungs Disease. This means that he was born with no nerve endings in a portion of his large intestine, 2/3 of his large intestine to be exact and temporarily had an ileostomy to allow his body to heal from damage caused by this disease. Hirschsprungs can affect any where from just a few millimeters to the entire intestinal tract in the most severe cases. The affected area is unable to function causing the person to become constipated. If left untreated it can cause illness and even death. It is often diagnosed with in a few days after the child is born but sometimes goes undiagnosed or misdiagnosed due to being rare and not well known. It affects approximately 1 in 5000 people. It is treatable but is NOT curable.
Thank you. #136
Today I am very thankful for near misses. I was pulling into a grocery store parking lot when another car just missed running into me. The lady was very apologetic. I am so thankful for those near misses because in a blink everything can change.
Thank you. # 135
I am thankful for the love for others that my kids have and their want to participate in Pink Shirt Day.
